# Clinical Registry Services for Cystic Fibrosis

> Contract award record from UK public-sector procurement sources.

## Key facts

- Public buyer: [NHS England](/buyers/nhs-england/contract-awards)
- Contract winner: CYSTIC FIBROSIS TRUST
- Award value: £131,794
- Tender value: £131,794
- Award date: 9 March 2026
- Published: 13 March 2026
- Contract start: 1 October 2024
- Contract end: 31 March 2026
- Stage: awarded
- Procurement category: services
- Notice ID: 19975c0a-f5aa-4a5a-b10f-ded8d9ed19aa-888564
- OCID: ocds-b5fd17-3cf2f276-438e-4a5b-b072-1250f1ecdd7b

## Description

To provide to Authority annual year of care banding information derived from the Registry, which will include a breakdown by Authority Specialised Commissioning Hub\. To provide at the request of Authority on an ad hoc basis such aggregated data as is available in the Registry for the purposes of audit and service evaluation, subject to the following: • Compliance with Research Ethics approvals, the Data Protection Legislation and the terms of any patient consent relied on\. • That Authority will make every effort to provide the maximum possible notice of such requests\. • That, on receipt of an ad hoc request, the Supplier will provide an estimated delivery date\. The Supplier will aim to complete requests within 10 working days\. This period may have to be extended subject to the complexity of the request, and concomitant work streams\. • That the Supplier will make all reasonable efforts to comply with specific deadlines set by Authority • Any data requests for Research purposes are subject to approval by the Registry Research Committee \(a sub-group of the Registry Steering Committee\)\.

## Related contract awards

- [Social Media Monitoring and Listening Tool 2025/26](/contracts/ocds-b5fd17-f7a9f527-0921-4f52-938b-47c2caf51a76): NHS England
- [Adult Screening and Personalisation Digital Delivery Services](/contracts/ocds-b5fd17-e39e63c3-cb93-443c-9d87-dfccd29235fa): NHS England
- [Finance Transformation & Enablement Project Support](/contracts/ocds-b5fd17-3607e706-33f0-41c5-b40f-d42e32d91957): NHS England
- [UK Cystic Fibrosis Patient Registry](/contracts/ocds-b5fd17-3c7475ec-1c28-4d35-a825-fdb67422ccfa): NHS England

## Source

[View the original notice on Contracts Finder](https://www.contractsfinder.service.gov.uk/Notice/19975c0a-f5aa-4a5a-b10f-ded8d9ed19aa-888564)