Children & Young People End of Life Pathways across Essex - Market Engagement Event

With advances in medicine and technology children and young people with life threatening or life limiting conditions are living longer into adulthood and in response services struggling to keep pace . In response pan Essex Clinical Commissioning Groups (Mid Essex CCG, West Essex CCG, North East Essex CCG, Basildon & Brentwood CCG, Castle Point & Rochford CCG, Thurrock CCG and Southend CCG) wish to ensure that there is an equitable and high quality palliative care pathway in place to support these children and their families.

To help us understand what this looks like we will be holding two workshops. The purpose of this engagement is to gain knowledge and experience from our stakeholders so that we can begin to design a children and young people's palliative care pathway which meets the needs of children, young people, their families and carers.

Additional workshops will be undertaken with children, young people and their families.

The agenda for the workshop will cover the following areas: Purpose of the workshop What we know and what have we done Building a pan Essex children and young people's palliative care pathway - what does 'as good as possible' look like? Next steps

Should you wish to attend please register your interest by sending an email to ebrewster@nhs.net stating which workshop you would like to attend. As places are limited we will contact you nearer the date to confirm your place.

The workshops will be held as follows: Workshop 1: Wednesday 21st June 2017 6pm - 8pm NHS Basildon and Brentwood Clinical Commissioning Group Phoenix Place Christopher Martin Road Basildon SS14 3HG

Workshop 2: Thursday 22nd June 2017 1pm - 3pm NHS Mid Essex Clinical Commissioning Group Wren House Hedgerows Business Park Chelmsford CM2 5PF Please note there is no parking at Wren House, the nearest parking is at Sainsburys which is a 5 minute walk away

Please note the deadline for registering onto the event is Friday 9th June 2017 at 5pm.

Key documents End of life arrangements for infants, children and young people with life limiting condition: planning and management. https://www.nice.org.uk/guidance/ng61

Ambitions for Palliative and End of Life Care http://endoflifecareambitions.org.uk/

Perinatal Pathway for Babies with Palliative Care Needs http://www.togetherforshortlives.org.uk/professionals/resources/11598_perinatal_pathway_for_babies_with_palliative_care_needs